We went a week without a hiccup, at least.......

No photo today. Things happened a little too quickly:
*
Meghan's incision was looking great. No sign of infection and absolutely no one was worried....except me. Something didn't look right to me: The incision was still looking "wet". I had been putting an antibacterial cream on the incision but sometime on Saturday, I lost it. I looked everywhere for it. Our nurse said that they would write an order for it, but it never came. So I can hear Joyce in my head telling me "Everything happens for a reason" so I offered a prayer that if Meghan needed this cream, I would find it. I proceed to turn our room inside out. No cream. So I went with trust and just cleaned her incision with alcohol instead. The next morning as the nurses were discussing why her head was wet, Meghan pops up with "I think that I am leaking spinal fluid". Immediately, I had a confirmation that she really was leaking cerebral spinal fluid but the nurses were skeptical, after all there was no sign of infection, just wetness. It was not until Meghan was at OT doing head inversions that we noticed drops of clear fluid dripping from her head, onto the mat. The cream was petroleum based and had previously stopped the fluid from dripping out. It was a blessing that it disappeared!
*
Within an hour, we were being taken by ambulance back to MGH. We have now been admitted and are waiting to see the surgeon tomorrow. They believe that the incision, having been opened 3 times, simply has not sealed properly and the CSF is leaking out. It's incredible that there is no infection seeing as there has been an open cavity into her brain for 2 weeks. (Prayers work). So we need to modify our prayer request again: We pray that there will be an open operating room, an available anesthesiologist and that the neurosurgeon will have time on his schedule to fit her in tomorrow. We pray that this will be an uncomplicated and timely procedure and that we will not be delayed in either Proton Beam or therapy.