Another delay........

Radiation was canceled today. After all my mental preparation, we were notified that the Proton machine was down! It is pretty tempermental and goes down quite often, but this time, there seems to be a serious problem as it has been down now for 5 days. They have flown in the design engineers of the machine, who are from Belgium. Truthfully, this is the downside for chosing a therapy where there are only a handful of machines worldwide.

I can't say that I was particularly sad, in actual fact, I saw it as a blessing. It's another 24 hours to allow her brain to heal from the surguries and the infected meninges. It was also a blessing for us that we were only delayed in our start date. People who are in the process of radiation had to switch over to the photon machine. No one was particularly happy about this, as the parents who have chosen Proton radiation for their children have all done their homework and they know that the risks are much higher for photon radiation than for proton radiation. All of us could be doing photon radiation in our home town, we are here in Boston because we have faith in the Proton therapy's ability to kill the tumors with minimal damage to healthy cells.